So, I can't sleep right now.
(for a number of reasons)
Realistically, Number 1 would be "Because I have been drinking."
Numbers 2-infinity will be discussed later.
Number 1 - "Because I have been drinking."
Thus the late night/early morning partnership of filoli and laptop.
Tonight, or last night, we had a couple of social events we needed to attend. The first was a fundraiser that we go to every year and my parents are quite active in this organization - so attendance is mandatory. The second was originally a social event for just me (a bachelorette party for a dear friend, who also has been Alpha's friend since they were 3, or born, or something). Since I ended up drinking more than I had anticipated at the first event, Alpha was saddled with the responsibility of driving Miss. Tipsy to and from the bachelorette party.
On my experience spectrum for tonight I have "stealing wine from other table at dinner since they are all fundamentalists and wouldn't drink it anyway," "determinedly circling silent auction table in awe that unnamed bidder 247 is jacking me on the only damn thing I am interested in," "blissful private stolen moments and jokes with my husband at the table," "a gaggle of girls giggling over confectionery penises (peni?)," "disconnected perching on stranger's couch watching dear friend open lingerie present after present and feeling simultaneously like an ass for forgetting to buy something and justified because why the hell are they giving presents at a bachelorette party-where is that jello shot tray again...," and "long deep exhale and divine happiness to see Alpha at the door to pick me up and take me home."
In case you were wondering, the CT Scan did not go so well.
I had a list, a list of words that I was going to be more or less comfortable with if seen on a radiology report, a list of words that I would be relieved by, a list of words that might force me to be a bit more proactive even if others felt I was excessive or overly concerned.
On Thursday, when we received the CT report I was shocked to see the worst possible combination of words:
Noncalcified Pulmonary Nodule
other
smaller noncalcified pulmonary nodules
as well.
What I did not put on my aforementioned list of words that I would be cool with was numbers.
Hello, McFly, anybody in there?!
See, the chest xray identified an pulmonary nodule of .4 x 1.6 cm.
No.Big.Deal.
Quite small actually - all good.
But
but the CT Scan found,
the CT Scan
found
a multilobular nodule measuring
roughly
2 x 8 cm.
8 fucking cm!
So what do you?
What is the best patient advocate response to all this?
You get your husband to a thoracic surgical oncologist specialist as fast as you can.
I had this a-ha/oh shit moment this afternoon and then again a few minutes ago that woke me up that part of my trouble with researching this issue is that I keep researching "small noncalcified pulmonary nodule" and chances of malignancy when if fact, perhaps what I am dealing with might be some size range clinically known as greater than "small."
Today is now tomorrow - meaning Sunday - which means that I am one day closer to Monday or Tuesday which is the day(s) that we were told they would call us to schedule our consult which we were told typically occurs withing 24 - 48 hours following review of CT Scans and other materials.
[I said "really, for Eva Luna's breast cancer we had to fight to get an appointment within 6 weeks." Alpha laughs and replies "yeah, the advantage of lung cancer is that with the high turnover it is easier to get right in."]
We could be meeting with the doc as early as Wednesday - or it could be Friday - I don't know...we wait - that is the general theme of "now" - wait.
We still are not telling anyone - just a few people - oh and me with the internet ("hello, internets")...Alpha doesn't want to stress out his mother and some others in our lives right now because he thinks that they will freak out, get depressed, and could be hurt and turned inside out if by the end of all this we get a confirmed noncancer diagnosis...
I sometimes agree and sometimes disagree,
but honestly my disagreement is largely due to the fact that by not telling people,
"hey I am freaking the fuck out on the inside right now because my husband is telling me how great his life has been"
I feel as though a gravity mountain of raw nerves has been dumped on my head and I am stumbling around trying desperately to walk with this almost unbearable heaviness...
or something like that.
I need to go to bed.
This is a shit post because this is a shit topic and this is a shit moment in life
and
it is some of the best moments of life too.
You know what I mean.
I have had so many moments and experiences in the last few days that I want to get down because everything feels like water running through my hands right now...but I am thinking
that right now
I am just going to go back to bed
and see if I can actually talk about this and that and this and that other thing with you later.
[sigh]
Because right now I feel just a bit better.
Friday Funny 2441: Parenting Funnies
1 year ago

17 comments:
Calling you later, or call me if you are up now.
Remember your blogging peeps got your back.
I don't even know what to write at this very moment.
I just feel pain for you and yours.
I am sending all the positive vibes I can muster at this time, and will continue to do so.
Oh, filohi. Much, much love.
I am also speechless, but want you to know we are here for you. Positive thoughts, energy and prayers your way.
Hugs.
Evelyn
Uuugh. I've been trying to find words all morning, but have completely failed. They are all stupid.
So just know that I'm thinking positive thoughts your way.
Oh Filoli, I strongly wish for you Good news, energy, vibes, juju, spirit, prayers, or good whateverthefuckpeoplewanttocallitandiftheywanttospeakintonguesreallyI'mfinewiththattoo.
Sending you good thoughts and heartfelt support.
So so sorry you and Alpha are dealing with this and how could you not have noticed that a complete loss of appropriate words has overcome me.
Cindy
Fuck.
!!!!!!!!!!!!!!!!!!!!!!! (<----)
Courage.
Filoli.
I'm just sending you every bit of my extra strength mojo to get through this time. This is me from the internet squeezing your hand, girl.
I'm not even sure what to say, Filoli, as I think the only thing that can make this better for you right now is hearing "Sorry for the scare, but it's nothing."
I'm sitting with you now, holding your hand...ready to listen, scream with you, cry with you, and to do whatever it is you need me to do.
I'm sorry you are going through this. So fucking sorry.
Yikes... I'm hoping for the best news possible. Better than best.
This was not what I was expecting to hear when I clicked on your blog just now. I am speechless. as Julia said we will be here for you. So so sorry that you guys have to go through this.
I'm also completely lost for words. Sending you the biggest, fiercest hug possible.
Sending you good thoughts and positive vibes ((()))
i don't have the right words. i am sorry about that. sorry that you have to go through this. waiting sucks.
this is a good post - not shit - but i know what you mean - but i am so happy you posted - happy we are here together - all of us - and more you know - you know some people just can't post - but they are with you too.
i am here.
I'm thinking of you....
Just checking in, to see if you are okay.
Thinking of you guys.
Charlotte
Hey sweetie, thinking of you. xoxo
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